Thursday, January 28, 2010

Absent

I always know that it has been an inordinately long time since I have managed to post anything when I start to get the emails... People are just caring, loving and concerned but what they really want to say is, "WHAT THE HECK IS GOING ON WITH YOU???". If I'm honest (and really, why stop now??), I'm struggling. I'm mired in a bit of a pit right now and seem to just be wallowing there searching the basement freezer for old, leftover Christmas cookies while I sit immobilized on the couch (during naptime, of course!) watching old reruns of Law & Order (I think that "SVU" is my favorite...). It isn't pretty. I didn't gain the dreaded chemo weight but I've put a whole bunch on since then! Enough already with the indulgent, "I deserve this" eating. Actually, now it is more like "wallowing in self-pity" eating... ugh.

The good news is that I finally called about the shoulder lesion biopsy and while they said that it wasn't nothing, it isn't anything to be concerned about. They called it a "deep" scar or some such thing. But... it's not cancer! yay!

I finally heard from the coordinator of the bisphosphanate study that I signed the consent for 6 weeks ago and wouldn't you know it, I was randomized into the arm for the IV drug. UGH. Looks like I should probably get comfortable with this port because now I'll probably be holding onto it for another 2 years!!

Radiation is producing a lot of itchiness and redness but I guess nothing that they weren't expecting. They did a lot of lecturing today about taking it easy, resting, etc. etc. I guess that if you try to keep pushing through the fatigue there is a high likelihood that you will totally crash. I'm trying to heed those warnings but that is just not something that I am really good at and... I'm just so completely over all of this stuff!!! I just want to get on with my life already. I keep wondering at what point I will realize that this IS my life...

So, that is the gist of it. We are up and down, mostly down right now. Darin came across some headline about a prior Survivor contestant who recently died of stage III breast cancer at 37, we picked up a random movie off of the Redbox only to find that the main female character dies of cancer, slowly... I think that all the everything of the past 8 months is just catching us and while we are functioning and doing "fine" in a day-to-day sense, we are just so, so weary of the journey. Our emotions are raw and our strength is fading. (which probably means that we are relying far too heavily on our own capabilities and not enough on the Lord!) Without ever verbalizing it, it seems that we are just trying to get through the rest of these treatments and whatever side effects they bring by gritting our teeth and hanging on for dear life. Keep the prayers (and the meals... goodness knows that I don't need to eat but neither do I have the energy to plan or cook! ha ha) coming. We need them now almost more than ever. You have all been so incredibly faithful to us that I hate to ask for more, but this feels like one of those times when we just look to heaven but can't even seem to muster the words. We need some peace, some rest and some kind of mental and emotional escape from this cancer world...

3 comments:

  1. Hey Sis...hang in there!

    I wish I was closer to you guys so I could bring over my "Best of COPS" DVD and we could watch the "I not know why I here" episode together. :)

    You all are constantly in our thoughts and prayers (apparently you all are in Taran's thoughts and prayers as well....the other night for the 42nd time he thanked God for the bed Dryden gave him and asked for the doctors to "make you feel better").

    Love ya Sis!

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  2. Dear Kristen,
    You will get through this and you and your faith will be stronger on the other side. I know it seems bleak right now, but when the radiation is over and all you have are a few remaining scars (and of course the anti-cancer meds that you'll forever be taking) you'll be surprised how quickly the time flew by.
    Here's a verse that's always helped me in my down times: Psalm 62:11-12 One thing God has spoken,two things have I heard: that you, O God, are strong and that you, O Lord, are loving.
    He IS strong (mighty to save) and he IS loving (the steadfast love of the Lord never ceases). He is bigger than cancer and bigger than all the crap that comes with it.

    Praying for you,
    Amy

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  3. Hi Sweetie! This is the time when we need to remember ALL the statistics we read about breast cancer SURVIVORS - don't let one story get you down! Easy for me to say, I know, but this is a new day - "rejoice and be glad in it"!
    Love those little ones (and your husband, of course)and just know that even if you're not blogging, you are our prayer priority here in Maine! Much love to ALL of you - Auntie & Uncle

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