I can now also see why a lot of people actually gain weight on chemo... when you can finally taste stuff again you have this feeling of entitlement to eat whatever in the world you want. I find myself having these little "well, I have cancer" pity parties over my Ben & Jerrys or wing-o-ritos. Maybe it's better for me to be feeling sick because I eat a heck of a lot healthier!! Truthfully... I really am eating very healthily (is that remotely a word?? it makes me just want to say: "strategery") overall but I surprised myself at how much I thought I "deserved" treats in the past couple of days.
So, I started this several days ago (once again feeling too "healthy" to post, I guess... ) and then today I went to see Milan (my fabulous hair dresser and friend - author of the short 'do that everyone has been so into... or, just really polite about...) to shave my head. It was becoming such a hassle to have so much mess in the shower, all over the bathroom, etc. etc. that I just needed to be done with it. Needless to say, it has been a VERY hard day. I knew this was coming, I do know that it is "just" hair and that it will grow back (but, for future reference, don't say these things to a cancer patient who is losing their hair!!! They truly do not need any more "perspective" from you, their healthy, head-full-of-hair, well-intentioned friend.), however I am just not dealing with it so well...
And... that little paragraph was from yesterday! For some reason I just can't seem to get the posts out these days!! I am truly, truly struggling with the hair loss and how I feel about wearing a wig - or not wearing a wig... it really just sucks. I'm uncomfortable with the whole thing. Additionally... I'm suffering from some serious acne that no one warned me about. So, not only am I now (almost) bald, but I have horrible skin to boot! nice... it's not bad enough to completely lose your confidence and sense of self with the hair, but you also get to look like a pimply-faced teenager (with 36 year old wrinkles, laugh-lines and the like). If all of this doesn't strip you down to your "bare" you, nothing will! (and maybe I'm just not at all comfortable with what I am seeing... clearly I'm having some vanity issues and God is dealing harshly with them, that is for certain!) ugh. Anyhow... there's been some difficult days around here and it isn't about to get any better. Tomorrow I am headed back to Magee to get my port (for those of you uninitiated in this arena, that is just an easy I.V. access that will be with me constantly until this is all over. It spares my few remaining left arm veins so that I will have something remaining from which I can have blood drawn or have other - less damaging - I.V.s in the future). Fortunately this is not a full-blown surgery (meaning that I get to have local anesthetic) but it is still another surgical procedure. Should be fun!
In the midst of the pain of the past few days the words of another song really stood out to me... this one is "Sweet, Sweet Sound" by Sarah Reeves...
Through all the mire and clay
You're washing me with grace
You carry me, oh Lord, through it all
So I will testify even in the fire
I live to praise my Savior
Hear the song of my life
Let it be a sweet, sweet sound
Let it be a sweet, sweet sound
I pray that this is the melody that I can carry through this mire. Some days it is just too heavy for me but I guess that really is the point... I'm not meant to carry it. He will carry it if I just stop trying to do it my way. I sincerely hate every minute of this but if somehow I can truly become what it is that He has planned for me by living this particular life, then it is the only thing that I want to do. As difficult as it is...
Your prayers lift our heads, your meals sustain us and your steady love for us carries us through these dark days. We love you all for all that you do for us. (and that means all of us... our kiddos have had some wonderful playdates and have been loved by so many parents who have plenty of their own little ones... what a gift.)