Wednesday, September 9, 2009

Chemo #2

Yesterday was chemo day #2. Not as scary as the first time because you kind of know what is coming. I had my new port all ready and raring to go (OUCH!! even with the numbing cream it was a little painful... guess that we're not quite all healed up there just yet). It was at least a little bit comforting to know that I wasn't wrecking any small veins in my left arm. Although, it did occur to me - belatedly - that now I'm potentially wrecking my jugular vein. You know... the one that comes from my head... I kind of need that... However, when I talked to my awesome nurse, Sarah (just a little shout out to you there Sarah!) about that she said what I was assuming, that because the jugular is such a big vein it is not affected in nearly the same way as squeezing all of that poison through a small vein would be. Makes sense to me!

Praise the Lord that I did not have a reaction to the Taxotere. I also mentioned the magnitude of my headaches last time around so they switched me from the oral Zofran to an injectible antinausea medication that will supposedly do the same deal on the nausea but prevent the headaches. I did come home feeling a lot worse than last time and was in bed by 8:30 (home at 6pm because I switched my time so that I could be at school for Parker's first day... hence the picture above!). However, today has been... ok. I'm very tired, foggy, already started on the pepcid that they recommended for the chemo-induced reflux and harboring a mild headache (albeit nothing like last time). I got my Neulasta shot this afternoon and am expecting that things will go about like last time... not so good for Thursday, Friday & Saturday with a gradual easing off of symptoms as time goes on. I can tell that my taste buds are slowly checking out (as my water tastes funnier and funnier) but I need to try to eat less dairy this time around even though that is what tasted pretty good last time (it caused too much cramping and other digestive symptoms). Looks like I'm left with bread and hard boiled eggs (for a WEEK...), yum.

Another big praise is that Parker is LOVING school!! He has been saying for the past several weeks that he didn't want to go, that he wanted to stay home with me, etc. etc. and given that I am not going to be able to take him or pick him up for a week or so out of every month, I was a little worried about how he would adjust. However... all of those fantastic prayers are carrying him through and when Jodi brought him home today he bounded through the door and couldn't wait to tell me how much he loved it. Thank you Lord!!!!!

Dryden is getting ready for school pictures tomorrow but somehow his much needed haircut got lost in the shuffle and just today he knocked out his OTHER top front tooth (one was already out and working on it's neighboring tooth on the other side) at his friend Luke's house... maybe there won't be any first grade pictures of Dryden... ha ha
Neely is not enjoying the fact that everyone is gone in the mornings on Tuesday, Wednesday and Thursday (especially since Mom isn't really a barrel of laughs these days) but she is hyper-verbal and talking up a relentless storm about anything and everything. She has somehow outgrown the 10 pairs of beautiful size 5 shoes that were handed down to us (our loss is Ruby's gain, I guess...) and is becoming a little opinionated about what she is going to wear (COMPLETELY new territory for a mom of two boys who just lays out their clothes and says, "go get dressed").
And as all of this happens around me, I lose more hair, rest a lot and feel often like I am pretty much just missing out on life itself. I do know that this is a season and that this is what I need to be doing right now, but I feel like I should be doing so much more (i.e. what I'm usually doing!). I am no use to any one in need, I can't help any of the multitude of friends who are helping me and I'm just a "taker"... UGH. I feel like I can't be there for Darin, I'm barely there for the kids and I just spend a lot of time thinking about what's going on with me. Last week was so nice (feeling almost normal) but yet such a tease... The doctor who did my port (I'm sorry, his name escapes me - me the type A, attention to detail and whatnot person... chemo brain already! and I'm really trying to keep up with those crosswords and sudoku puzzles...), asked something to the effect of my feeling like things were really moving along in my treatment at this point and I had to tell him frankly... "no". I feel like it has barely started and as if time is almost standing still. However, it's God's time and His timing and whatever these next endless months hold will not come as any kind of shock to Him (even my attitude and inability to be paying closer attention to His plan... He's probably thinking that NOTHING will get this girl to sit up and stay focused!!). The only reassuring thing is that no matter how distressed I get, my faith remains. I know that the Lord has not abandoned me, nor will He. And, luckily for me, neither have my friends, neighbors, Bible study cohorts, church family, immediate and extended family and a whole host of people whom I haven't been in contact with for ages! WE ARE SO BLESSED to have each and every one of you! So, I will carry on, bad attitudes and all. Hopefully this round will not be any worse than the last, but if it is... so be it! This too shall pass...

7 comments:

  1. Hey Kris! Thanks for the update even when you're feeling crummy. It's such a huge praise that Parker is starting off preschool on a positive note! I'm also so thankful for the reduced headaches. Keep fighting the good fight, girl! Be strong and courageous...for the Lord your God will be with you wherever you go! Hugs until we talk again...Shawna

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  2. Hey Kristen.

    You do know I love the fact that Neely's loss is Ruby's gain. With all Neely's cute hand me downs Ruby will be one of the best dressed girls! Thanks again for them, girls can never have TOO many clothes. And BTW are you preparing me for what is to come... girls actually want to pick their clothes?!?!

    Cortney

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  3. Hi Kristen - I am thankful school is going great for Parker and will keep praying for him as well. You brought a big smile to my face as I read about Neely wanting to have an opinion on picking out clothes. I can remember being in a shoe store with Court and she picked out these shoes (she was about 3) and she found a pair that she instantly fell in love with. She gave me adorable reasons as to why these shoes would be perfect for her. I am thinking to myself, "ugliest shoes I ever saw and there is a reason there is so many left on the shelf"! Wish I had a cell phone back then I would have taken a picture for her scrapbook. Needless to say, we didn't purchase the shoes, she was mad for awhile, but then it passed. Fastforwarding 11 years and we have a daughter who helps the rest of us pick out our clothes. It really is a big help. So in a few short years, you will be seeking her advise in the fashion world!

    On a more serious note, I am so grateful for your blog. Your strength is a amazing and your attitude, even on the down days, is wonderful. Thank you again for helping me appreciate the little details in my life. As I said before, wish we could be there to help you physically and that miles didn't separate us. Please know a day doesn't go by, that we don't think of you and pray for you. We love you and send hugs to all. Praying each day gets better! - Sangrey crew

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  4. Kristen,
    I read your blogs all the time and you make me cry and you make me laugh but above all you make me understand what it is to have faith. I continue to pray for you. You are one of the strongest people I know.

    On the note of feeling like a "taker"...just take it!! This is your chance to allow others the wonderful feeling of "giving" As a ususa "giver" I know that you know how great it feels to help out your family and friends...let them feel the same way! I wish I was closer to be able to help too. I feel so useless for you and so far away. But in my time of need, you sent notes and a card and that meant so much to me at the time. I am racking my brains trying to think of a way to repay you from so far away. I am still working on it...it is coming...don't worry! :)
    Lots of love,
    Kristin (and Patrick too!)

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  5. SOOO glad Parker's first day went well. I was remembering Tim and Scott (won't go into detail but I'm sure Bonnie remembers!) and their apprehensions that carried on LONG after pre-school days. Sorry T/S, just had to say it...many laughs over it later in life. Guess that's family info that others may not get!!! Your picture is wonderful - beautiful smiles! We are so blessed by this blog as someone else has said and hopefully it is therapy for you!
    We love you (all) and please know that your family is our "priority in prayer". A&U

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  6. Hey Mamasita ~

    WOO HOOOOOOOOOOOOOOOOO for Parker! So glad his first days of preschool went well and that he loves it so much. I have been praying for him and that whole transition every day. Love the picture, too. How wonderful that you could be there with him on his big day! Glad to hear ChemoDay#2 was not so bad. I'll continue to pray that the "aftermath" becomes more bearable. Sending lots of prayers and LOVE your way. Hugs to all ~ Love ya, K + S

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  7. My name is Missy King. I am Matt Buckwalter's sister, hence Naomi Norene's sister in law. I am a mother of 4 kids, and you are on my heart. I am praying for you much. Just wanted you to know that there are people following your blog who you don't even know...upholding your precious family to the Father. Take heart. Your family is beautiful, and you will get thru this...

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