Monday, June 1, 2009

Return to reality


As we zip along route 80 through Pennsylvania towards Columbia Court we are anxious to see the little ones that we left at home but a little bit sad to return to the reality that we left behind. And I truly did leave it behind. I got my appetite back (the fresh omelets and cupcakes at the wedding as well as the grilled meats and Scott's birthday cake in Manchester were a big help...), for a few days anyway, and lived in a little bubble where cancer wasn't swirling everywhere around me. We got to cuddle baby Mia in her very first days of life and even spent a day with long lost friends at Hampton beach. It was much-needed. Parker has been a FANTASTIC traveler and has truly enjoyed being the recipient of all of mom & dad's attention. What a special time for all of us. So many thanks to all of you who prayed that this would be a relaxing time for us.

Unfortunately I picked up "Living through Breast Cancer" when I got back in the car and immediately felt the heaviness of permanent disfiguration, strong medication and the shadow of metastasis creeping back in. Ugh. While Friday's appointment was definitely somewhat positive, there still remain so many unknowns that it is difficult to have peace with our next steps. We will hit the ground running tomorrow morning with the CT and bone scans. By Thursday we should have all of the diagnostic testing behind us (I've started referring to everything as "we" and "us"... I've always been a team sport girl, I guess... sorry Darin! It's not as if he actually has cancer, but he surely has to live it. I couldn't be blessed with a better teammate... both in cancer and in life). Then it will be major decision time and we would welcome much prayer that we choose wisely. It is pretty tough to navigate this crazy cancer path and you are always wondering if you are doing enough, learning enough and seeing enough doctors (if you can believe that one...).

Matt & Andrea's wedding was on a beautiful New England day in Andover, MA (and btw... that was the BEST coffee that I've had in a long time. I may have to make a special visit back to the Andover Country Club just for a cup of joe... ha ha). It was so fantastic to see the many family members that we rarely see. We got to show off one of our adorable children (Nikki... wait until you see the pics of him in that jacket... it was priceless!) and he was sooo good. He was telling everyone who was trying to catch up before the service that we need to be very quiet! He also kept confusing Uncle Scott's birthday with cousin Matt's wedding ("is this the birthday?" and "will he take his father's name??" clearly we need to do some more talking about marriage...). We spent the next day at Hampton Beach in New Hampshire, chasing freezing cold waves, dodging blowing sand and having some fabulous fried seafood at Lupos. YUM!! But, just in case you are worried that I didn't get my recommended daily allowance of bulgur... Darin & I had spotted a Trader Joe's from the highway on the way up in CT, so we swung by there on the way home to hit Starbucks (once you get any farther north it is all Dunkin, all the time) and pick up some healthy treats for the way home (tabbouleh, anyone?). All of this was sandwiched around time with my immediate family playing wiffle ball in Scott's backyard, watching hockey (try not to despair, Ed...) and enjoying baby Mia.

All in all it was a really wonderful weekend. So many thanks to Grandma Hawn and all of the incredible friends who have helped her with Dryden & Neely. We are so blessed by all of you.

10 comments:

  1. Thanks for keeping us updated with your blog. It is so helpful to know what to prayer for next. (And you are getting lots of prayers!) So glad you had such a wonderful weekend. Our prayers are now focussed on your decisions regarding treatment options, and of course complete healing (which I will continue to pray for until the day my prayer is answered!)
    We miss you guys but you are always near in our thoughts.

    ReplyDelete
  2. Kristen - I haven't written for a few days, but you are still very much on all of our minds. We have added your name to several prayer chains and are so grateful your weekend was exactly what we prayed for. You have many important decisions to make and we wanted you to know while we are miles apart, you are being lifted up in prayer several times a day. Thanks again for taking time to update the blog, it helps all of us traveling with you on this journey, more than you know! Give our hugs and love to the family. Also, we are enjoying the comments of your adorable children. Miss you and love you! - Sangrey crew

    ReplyDelete
  3. It's great to hear about the weekend, Kris. I hope to talk to you soon. I know this week is crazy - especially tomorrow. I'll be praying (as always) and give me a call when you're up to it! Hugs - Shawna

    ReplyDelete
  4. klh-

    I am just getting to reading your posts...Thanks Cheryl for the link! Regardless, I have a few things to say...and as you know I am usually brutally honest and don't believe in sugar coating. For those of you who don't know me...I say everything with the utmost respect and best intentions at heart. With that said...

    A. I seriously think you are giving God a little too much credit here! I mean seriously, I am all for the big man....but it is YOU that are getting through this and YOUR strength. I know, I know, you get it from him, or her :), but I think you need to pat yourself on the back a little girl!

    B. You are so good at giving us some scripture on Gods ways, his testing you, etc. We all know I can't quote a scripture to save my life, except something about and eye for an eye...but lets get some scripture up there about this sucks and you are kicking some ass! I know it has to be in some testament somewhere!!!

    C. Bulgar and Flax? How about Budweiser and Nacho Platter... Seriously....and call me first!!!

    D. In terms of that Pharmacist friend....how about a little xanex added on, like a free gift, or a bonus pack. Nothing will make you forget real life like a little help from that pink pill!
    Again...call me first.

    Ok, on a serious note...girl, you are an inspiration, and please do not one time doubt that. I think most of us would still be laying in bed with the covers pulled over our head and your facing this head on and road tripping to New England in search of country club coffee! I read your blogs tonight from the earliest to todays...I laughed, I cried, I thought what can I bake? Can I come watch the kids? Should I bring the budweiser? And then I realized....hm, I don't really need to do anything (even though I will) because she has GOT IT TOGETHER. You have control over this, and when I say control....that also means you know when to "lose" control, and cry your eyes out and scream why me, why us? So when I read your posts, at times I thought you may feel those times of doubt or negativity are showing some weakness...and I don't think that could be any further from the truth....its all just part of the plan of being in control. And besides, it really does feel good to scream and break things doesn't it? Get those kids down to the clay cafe, craft up some "cancer plates" and then smash the hell out of them with a hammer or your fists!

    Lots of love to you girl...

    Shelly

    ReplyDelete
  5. Kristen,

    Ditto what Shelly said!! Ed wants to meet her, any girl who encourages beer and nachos is a good friend!! Glad to hear you had such a great trip, hopefully your scans came back good today.

    As always, thinking of you.
    Cortney

    ReplyDelete
  6. Kristen -

    We loved having you, Darin, and Parker here for baby Mia's first days! Of course, all Taran talks about now is Cousin Parker's Star Wars books, so I guess we will be on the lookout for some of those. :)

    You all are constantly in our thoughts and prayers (and believe me, with a 6 day old in the house there are additional "awake" hours).

    We love you guys! Give our love to little Neely and Parker!

    ReplyDelete
  7. Cupcakes......omelets......FRIED seafood....really good coffee...grilled meat...birthday cake....YOU GO GIRL! SO glad you lived it up this weekend and didn't eat BULGAR and TEMPEH (that's going to be my "thing" to harass you about for the long haul, you realize this I hope). And WHEN I come to visit (it has been WAY too long), rest assured there will be M+M's AND cream horns coming with me! ha ha.....Hope your week back in "reality" is going well. Love you TONS....praying for you more than that....
    ~Coz

    ReplyDelete
  8. hi honey..can't access my email from here but hope you get this note..please know that you are covered in prayer from this end especially tomorrow as you meet with this next dr..for clarity, understanding and wisdom as you get further information..psalm 139 has become such a blessing these past several days assuring us of His constant presence with us .."preceding us and following us"..never being able to escape His presence..will pray you will be feeling that (both you and darin)tomorrow ...knowing and believing that "His Perfect Love for us really does cast out all fear"..that is my prayer for you both..constant prayer..how wonderful to know that our Awesome God is not a temporary fix but constantly with us now and forever!.love you so very much..mom and dad

    ReplyDelete
  9. i ditto shelly's sentiments...only make it beer and buffalo chicken wing dip!!

    praying for you - as always....

    love you,
    sara

    ReplyDelete
  10. Your strength is an inspiration Kristen. I've always admired you as a mother, wife and friend ~ so caring, fun-filled and organized. This is a whole different side of you. Your reflection is powerful. And to think I was feeling sorry for myself for getting old and droopy. Thank you. Brian and I will take a moment for you everyday. With love

    ReplyDelete