Wednesday, June 17, 2009

more of the same...

...answers that only bring more questions, that is. I got a call from Dr. Puhalla (again, the medical oncologist, why is it that you just can't keep this straight?! ha ha...) last night with the PET results and her recommendations for our next move. The good news is that no cancer showed up anywhere else (there's a stable granuloma in my lung which we've known about since I had the flu 6 years ago and a cyst in my kidney??? i didn't even have the energy to inquire about that since she said it was nothing to worry about. But you do have to wonder... does she mean "don't worry" relative to the fact that I likely have stage IV cancer and that is going to kill me first?!??). There was evidence of lymph involvement in the axilla (under my arm next to the original cancer), which she felt was to be expected given my grade of cancer cells and the size of my tumor. Additionally, the rib spot was found to be PET negative... yay... however, as it turns out, that really doesn't mean anything. The radiologists found it necessary to remind Dr. Puhalla that bone scan is really more sensitive to bone metastasis (which she agreed with, to a point...hmm... anyone confused yet??) and it was very positive on bone scan. So... she is referring us to the thoracic surgeon at her very next available appointment (likely to be Monday, but I'm praying for something sooner) and we will most likely proceed with the rib resection instead of biopsy due to all of the reasons that I described before. My feeling is still that her feeling is that it is cancer. However, I am now thinking that she was expecting to see a LOT more cancer light up in my ribs with the PET, which would be why she sounded so positive about these results. I'm not sure how I feel. I'm still at the same spot, thinking the same thing. It is likely that we will get in for the rib surgery next week and then hopefully the breast surgery within the next couple of weeks. Supposedly they are still working on scheduling that and still waiting for the BRCA gene typing to return.

The kids were in on a little bit of our discussion this morning about upcoming surgery etc, and all that Parker could say through his little boy tears was "hold you Mommy". He used to say this all the time when he was a baby and still does whenever he is feeling frightened or sad. And this has been his response to everything regarding this all along. Dryden quickly told him that it was fine for today but as soon as I have surgery I can't hold him. Thanks... Dryden... oh, this is so hard! Then at breakfast this morning Parker prayed, as only a 4 year old can, that God would make me better without the surgery! How wonderful that he can understand that God doesn't need surgery to heal people's bodies!! I need to believe that on the same level that he does...

9 comments:

  1. Thanks for the update Kris....that is good news! I will take every victory we can get, no matter how small. :)

    We have you in our prayers....Taran prayed last night a very similar request to what Parker did...I wish my faith was more like that of our children! :)

    Love you!

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  2. Kristen -
    We are praying with you and for you through all of this. Thanks for having the strength and courage to share all of your thoughts and updates with.
    Love and hugs....the Roys

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  3. Good update. Thanks! With all these scans, now you know exactly what needs to be chased and where (and have a good amount of happy news about where the cancer is NOT...)So, let's get crackin' on the rib thing.

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  4. Praise God!! no cancer showed up anywhere else. We'll be praying that the thoracic surgeon appt. will be very soon - like this week. And, oh, these little ones have soooo much to teach us! Love you all and have you in our thoughts and prayers. Paul and Faye

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  5. praising God for clean scan otherwise..now it is on to treat what we know is there..and with Parker-size Faith ..child-like mustard seed size faith that can move mountains..I BELIEVE!!!!loving you always..dad and mom

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  6. sweet kris
    what great news! we're joining Parker in amazing healing even before your next visit....i read yesterday in this sweet little devotional.....Dont miss the Joy of My Presence by carrying the weight of the world on your shoulders. Rather, take my yoke upon you and learn from Me. My yoke is comfortable and pleasant; My burden is light and easily borne.

    i can honestly say i don't know how to do that in the midst of cancer ....but i know He is faithful! i love you girl
    naomi for the buckwalters

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  7. Kris - Thanks for the update. We are praising God for the news of where the cancer isn't and for the doctor's who understand all the tests and results. After reading Parker's comments, I was reminded once again, while Christ walked on this earth, he LOVED to hang out with children, and sometimes it takes the view of our little ones to be reminded of the bigger/deeper things. We continue to pray for you and keep adding your name to prayer chains. We love you and pray that appointments will open sooner and that all results will be back soon. Hugs to all - Sangrey family

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  8. Hey Coz....

    Thanks for updating us.....AMEN that there is no cancer anywhere else! And, for the record, I'M WITH PARKER!

    Love you TONS and miss you more than that...Coz

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  9. SO - I just wish I was there to HUG Parker too!!! With tears streaming down my face and thanking the Lord for all of the times you wrote the word "positive" in this blog, just know that you are deep in our souls and your name is the first in our prayer of the morning, in our breath prayers throughout the day and again in the evening. We are distant geographically, Kristen, but close in heart, as always. We love you soooooo much. Auntie and Uncle too!

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