Thursday, June 11, 2009

not so good news

Not that it is so surprising these days... I'm not really sure what we were hoping for today. I guess that it was something along the lines of what we heard when this rib spot was first noticed which was, "let's just wait until after surgery". However, that was not the case today. Dr. Puhalla was very thorough and is clearly very good at what she does. In this case that means that I am scheduled for a PET/CT on Monday and she is following up with specialists at Presbyterian Hospital to determine whether it is worthwhile to attempt to biopsy the rib (which, apparently, is historically unreliable making Dr. Puhalla's gut feeling that they will say, "don't bother") or go straight to surgery to extract the rib itself for testing. Apparently this is a somewhat involved surgery, but I guess that we'll just see what is recommended. We're not exactly sure what this does for the breast surgery, which remains - as of yet - unscheduled.

Personally, I got the feeling that Dr. Puhalla thinks that there is a good chance that this is metastatic breast cancer, but we are praying that it is some other random fluke of nature. Unfortunately, there aren't a lot of good, random explanations that seem even a little bit plausible... (no car accidents that I somehow "forgot" about, no serious colds with extensive, deep coughing that I just don't remember, etc. etc.) She did say that it would be unusual to have only one rib involved and no enlarged lymph nodes, but isn't it just kind of unusual to have this large tumor at 36??

Please pray for some good news here. Finding a distant malignant site would immediately move me from somewhere in stage II cancer (curable) to stage IV (incurable... although manageable). It's a scary prospect and as I sit here typing while looking at a smiling picture of my little Neely... it is an almost unbearable thought. I don't have time for this cancer crap, I have a whole family to take care of!! A husband who needs his wife and three little children who need a mother - their mother. Today it feels so sad and so lonely. Is there a bottom to this bad news? When is the part where I get to start to do something about all of this? And... when did I go from being such a healthy, young mom to... this... whatever I am today? It was so hard to sit in the medical oncology waiting room filled with much older women in hats, scarfs and other headgear today. One of the nurses even tried to direct me to a visitor's bathroom because she didn't realize that I was the patient...

so... no words of wisdom or strength or courage today... today I am praying that the Holy Spirit is translating my groanings to the Father in words that only He has. Thank you for all of your prayers and your constant support.

8 comments:

  1. Kris, My heart breaks for you. I so appreciate your honesty. I know you are one who doesn't want pity. I will continue to pray and lift you before the throne. I wish we didn't have miles between us. I would hop in my car and bring a bag of M&M's and a box of tissues. I wish I had a great thought or perfect scripture to encourage you, but right now I don't. We love you and are here to help anyway we can. We will also be praying for some good news in all this. Love you much, Sue, Bob, and girls

    ReplyDelete
  2. Dear Kristen - I just had to cry as I read your blog tonight. I have no words of wisdom except to hang on to "God Is The Blessed Controller Of All Things." You and your family are in my thoughts and prayers constantly and I feel confident that there will be Good News one of these days. Love & Prayer Evie

    ReplyDelete
  3. my heart is heavy for you this morning reading your blog. I KNOW that He is faithful and true. i read Psalm 62:5 and thought of you. "MY SOUL, WAIT SILENTLY FOR GOD ALONE, FOR MY EXPECTATION IS FROM HIM." i don't remember reading this verse before but it caught my attention that David was speaking to his soul(his mind, will and emotions) to wait for God because ONLY through Him can he overcome the hurdles that are in front of him. i love you Kris.....He has made you a fiery italian by no accident but to be a fighter! HE HAS EQUIPPED YOU FOR THIS RACE!.............
    i love you
    naomi

    ReplyDelete
  4. Hi Kristen, I am following your saga through Danielle. And am keeping you in prayer. This portion of scripture came to mind to me just this morning and I think it was for you ....and He is the lifter of my head.. let Him hold you up during this time. Don't let the anxieties of tomorrow rob you of today's joy.

    Marcia Russotto

    ReplyDelete
  5. I love you sis.....my heart breaks for you and the family. We are praying for God's strength to guide you through this.

    ReplyDelete
  6. my dearest kristen..when we trust God for what seems like the impossible..that's when He does His best work in our lives..it's easy to trust God in the little things but to trust God completely when there are no other options..that is true trust ..be assured that God is watching over you and STILL in control.."I will trust and not be afraid"..knowing God is with us gives us courage..fear paralyzes but courage is what helps us move ahead..it doesn't conquer fear but makes it ineffective..God has PROMISES His help in time of need..loving you as always..dad and mom

    ReplyDelete
  7. We are praying constantly for you and the family, Kristen. We love you.
    spk
    ><>

    ReplyDelete
  8. Still lifting you up in prayer. I know this is so hard but it will get easier once you can start doing something. The tests, the questions and the unknowns are almost unbearable, but God's word is known and He will bear you up. I know exactly how you feel about sitting in the oncologists office with women at least 20 years your elder. I feel like a complete freak also being 7 months pregnant. Still, it's where God has us. One last thought. I recall in those first few weeks of my diagnosis, not even being able to look at my children without fear, guilt and lots of tears. Like you, I couldn't imagine them growing up without me. But God spoke clearly to me through a friend...He loves those kids more than either you or your husband ever could and He has their eternity in His hands. They are His and He will not fail them. Hold on to that promise.
    -Amy

    ReplyDelete